Sunday, November 9, 2014

Sunday Synch: Dear Nancy Grace

My Sunday post on Age of Autism is a letter to HLN's Nancy Grace.  I wrote it after watching her interview Becky Estepp, a friend of mine.  Nancy learned on air during that interview that you cannot sue a vaccine manufacturer.  Kudos to Becky for getting that conversation going.

In the letter I describe some of Ronan's story.  I encourage you to send your own letter if you have had similar experience with vaccine injury and with Vaccine Court.  

Vaccine injury is real.  For some, that injury can be minor.  It can be a short setback.  But for others, like Ronan, vaccine injury can devastate.  It can do long-term damage.  And it can change everything.  

xo, Cat


Dear Nancy Grace—You Cannot Sue Vaccine Manufacturers

Nancy graceBy Cathy Jameson
By the time this article goes to post, Ronan will be done with a 48-hour EEG.  He was admitted Friday for testing because medication is not working as we’d hoped and his seizures have increased.  We appreciate good thoughts and healing prayers as we continue to work through his vaccine injury and while we rethink better treatment options. 
xo, Cat
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Dear Nancy Grace,
I watched a clip from your Monday, November 3, 2014, show and wanted to send you a letter.  I could see that you were shocked about something and would like to add to what you asked Becky Estepp  to explain to you in plain terms. 
I’m glad you asked for further explanation of such an important topic.  More people need to know that they cannot sue vaccine manufacturers if they encounter a problem with a vaccine.  Not being able to take legal action for something that is pushed so heavily is an unfortunate truth. 
I’m sure you’ve had a chance by now to visit the U. S. Department of Health and Human Services webpage that explains what the National Vaccine Injury Compensation Program is.   Anyone contemplating a vaccine should take time to read through that site and understand what that program entails.  It includes crucial information that isn’t overly advertised like vaccines are. 
One the website, you saw what the US government recognizes as a vaccine injury.  You read about the steps it takes to file a claim and learn about the “Vaccine Court” process.  You saw the breakdown of past claims.  You caught sight of several charts and a statistic report.  You read about an excise tax, a tax paid by vaccine consumers that the government uses to pay claims.  I hope you also clicked on the link that shows how much has been compensated (which, as of November 3, 2014, is $3,021,080,103.09) to the vaccine injured and to families who’ve lost a loved one due to a vaccine. 
Now, I don’t think I’ve seen any first-hand accounts from families on that particular website, but you can contact me if you want to hear my family’s experience with that program.  Fair warning:  our experience was terrible.  Terrible!   
Here is some of our story. 
My son, Ronan, was a happy, typical baby.  We saw seizure activity after Ronan received the flu shot and have been dealing with the nightmare that comes with seizures ever since.  Other vaccine injuries, recognized by the government, were also the result of vaccines.  When I discovered that those injuries were linked to vaccinations and could confirm them, I was encouraged to file a claim.  I did so believing that the program would be on our side. 
How wrong I was. 

We were part of the NVCIP for eight years.  In those eight years, not only were Ronan’s injuries and claim denied, we watched him further declined due to secondary illnesses stemming from vaccine reactions.  Ronan, once healthy and developing, now has severe medical, educational and physical issues that could last his lifetime.  Like other families who’ve filed, when push came to shove, when it was us against the government, when it was our word against their government-funded legal team, we could not prove on paper, even though we saw them happen right in front of our eyes that Ronan’s injuries were from vaccines. 
We jumped through every bureaucratic hoop.  We provided documentation after documentations.  Medical records, expert testimony and more.  We believed in the system, but when a system was created by the government for the government's gain, of course people like my son can never get what was supposedly promised them. 
Vaccine injury and not being able to hold vaccine manufacturers responsible for their products, is an important conversation to have.  Here’s where I need to ask you a big favor, Nancy. 
You asked a very important question on air.  Please, continue to ask questions.  And please, continue this conversation. 
Our community has tried in vain to get this conversation going and has faced more backlash than cooperation.  We even broached Congress about this, but we got turned away.  Here is part of the letter I sent to Representative Darrell Issa a year ago when the hearings to address the corruption of the NVICP were cancelled:
Dear Mr. Issa,

This is Ronan.  This is Ronan post seizure.  His seizure were brought on by vaccine injury.  Today, his seizures are gaining in duration, frequency and intensity.  I fear what they will do to his health and possibly his life. 



Ronan was injured by his childhood vaccines.  Thankfully we learned the devastating effects of vaccines when we did, but it wasn't before serious harm was done.  Ronan lost his voice, lost skills he was building and was left with seizures, severe developmental delays and other secondary illnesses that physically drain and affect his energy.

When we discovered that the vaccines were responsible for the damage done, we enrolled in the Vaccine Injury Compensation Program.  We had high hopes that the program would recognize what was so apparent—that they did something to my beautiful, healthy baby boy.
 



Sadly, after devoting years to this cause, Ronan's case was dismissed in July 2013.  Disappointed doesn't even begin to describe how we felt when we learned his case could go no further.

You have more than enough evidence in front of you, evidence coming from families like mine who are willing and openly share story after story after story that vaccine injury is real.  It hurts.  It steals childhoods.  It changes lives in one of the most devastating ways ever imaginable.

Mr. Issa, you and your committee gave parents like me such hope, hope maybe not for Ronan as we were already on the receiving end of a very screwed up system, but for other children.  Think of the other children, their families and their futures.  YOU can do something good for them.  YOU can change the past and make the future better, or at least bearable.  

We needed someone to champion this effort.  I had hoped you would be that champion. 
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Darrell never got back to me. 
And those hearings we families were promised have still yet to be rescheduled. 
The government continues to grant indemnity to drugmakers.  That allows vaccine manufacturers to make and to sell potentially harmful products, products that have extensive side effects, that are known to cause adverse reactions and that have no guarantees.  Why?  Because both the government and the drugmakers can be as irresponsible as they want with no repercussion of their actions. 
No other product or manufacturer can get away with that.  None. 
Nancy, now that you know what you know, could you help champion our effort?  Could you step in and use that voice of yours to speak up for us and for our children?  You’ll have a great amount of support from countless other families in our community.  I promise you that.   
We need support.  We need someone who isn’t afraid to speak up.  I know that you are a passionate person.  I’d love to see you share that passion with us. 
Respectfully,
Cathy Jameson, mom to Ronan
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Link to the Age of Autism post:  http://tinyurl.com/DearNancyGrace 


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